ERN-RND (Rare Neurological Diseases)
The ERN-RND (Rare Neurological Diseases) deals with rare neurogenetic diseases with a focus on movement disorders. The LMU-Klinikum is represented here in particular with its expertise on hereditary ataxias and spastic paraparesis as well as on the group of diseases Neurodegeneration with Brain Iron Accumulation (NBIA). The ERN-RND brings together 32 of the leading European centers in this field in 13 EU member states. It is coordinated by the Center for Rare Diseases at the University Hospital in Tübingen, while Prof. Thomas Klopstock (deputy Prof. Maggie Walter).
European Reference Networks (ERN) are associations of highly specialized clinics in Europe funded by the European Union, which are intended to provide the best possible cross-border diagnostics and therapy for patients with rare diseases, the implementation and harmonization of care standards and the facilitation of translational and clinical research. After an extensive application and testing process, the positively evaluated European Reference Networks were announced on December 15, 2016 by the European Reference Network Board of Member States. The official inauguration of the networks took place in Vilnius, Lithuania, at the beginning of March.
Contact:
Prof. Dr. Thomas Klopstock
E-Mail: thomas.klopstock@med.uni-muenchen.de
Source: Pressemitteilung KUM